Meet the girl

who inspired our mission

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We believe all women can embrace who they are,
can define their future, and can change the world.

Our Mission

Our purpose

Macie's Mission Foundation is dedicated to improving the lives of those in need. We focus on providing resources, support, and advocacy for underserved communities, ensuring everyone has access to essential services and opportunities for a better future.

Rett Syndrome

is a debilitating condition. Macie has lost the ability to walk, talk, and use her hands, and like many Rett warriors, she relies on caregivers for daily needs. Yet, there is hope. Thanks to decades of fundraising and research supported by organizations like the Rett Syndrome Research Trust (RSRT) and International Rett Syndrome Foundation (IRSF), significant breakthroughs have been made; including identifying the MECP2 gene, discovering reversibility in animal models, advancing gene therapy research, and establishing Centers of Excellence across the country.

Meet the team

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